Click on any small photo to see it larger.   If you click on that larger photo then you may be able to see it even larger.

We started this web site in the hope that someone else who has a child with problems will see it and not feel quite so alone.   

Debbie felt quite adrift for a while and there seemed nothing that the family could do to really help.   She felt guilt and anxiety - How will I cope.

No one cold give us much information about how much was truly wrong with Ryan and we knew next to nothing about any of the problems we had been told that he had.   I started looking on the internet and haunting the library.   It was very hard to find useful information.   I sent off email after email to lots of organizations and associations but rarely got a reply and when I did get a reply it was mainly jargon that none of us could understand.   I did manage to contact a couple of other families who had similar problems and we pooled our information.

When Ryan was about 2 years old Debbie attended a meeting weekend with other hydrocephalics.   There was an adult hydrocephalic there and he was able to give a lot of insight into the day to day problems.   That was a great help.

We all have days when things seem bad and we worry about how Ryan will manage.   How bad the brain damage will be and how it will affect him.   If you know there are other people who have gone through the same thing then that can help sometimes.

So if you have or know a child like Ryan - a SPECIAL CHILD - and would like to exchange information, experiences or maybe thoughts or if you would just to know more about Ryan please contact us by clicking on the link.   We'll try to keep the site as up to date as we can and hope it does not grow too big.

Email Ryan