This year Ryan has come on in leaps and bounds. In January Ryan joined a "special" football
club. There do not seem to be any set number of children on either
side and they are all of very varied ability/disability.
I have the utmost respect for the people who run it. Trying to
organize children into a football team must be hard enough but with children the
like our Ryan the task must be even harder and must require a fantastic amount
of patience. Frequently you see a child just sit or lay down
on the pitch in the middle of a game. Someone checks them and they
either get up and carry on playing or go and sit on the sidelines with an adult.
The children enjoy it
In
March we went on holiday to Lanzarote, it was the first time Ryan had
flown. Rebecca sat with her mum and dad and Ryan sat with us - he
said he should do that because "you won't have a child and that's not fair,
so I'll sit with you".
He got a bit bored in the airport (but then don't we all) and
held on tight when we went through the various checks. He did not
like the metal scanning and got quite worried when his grandpa had to hand over
his bottle of water - "what can we drink now".
We did not have any idea how he would be on take off or
flying. As it was he sat there looking out of the window and when we
started to move he asked "will we go any faster than this
?". I said yes we would "well he better be careful
then" was his only comment on the speed. He felt the bump as we
took off and looked out of the window, "we're not going any
higher are we ? " I said yes we would so that we could fly
safely. He looked out of the window again and saw the houses looking
so tiny "Oh my Lord, that's not right, that's too
high. I'm not looking out there again Granny".
He then played with his Nintendo DS until the food arrived.
Landing was fine, he held my hand and took it all in his
stride.
The holiday was wonderful Debbie & I were in the pool
every day with the children and everyone loved the Jacuzzi.
I hope
it did Ryan some good, I know it eased my arthritis.
Ryan and his dad on Timanfaya
just a selection of shots of Ryan taken on holiday
The
summer at home passed quietly, we did the normal things that families do in the summer
holidays, visiting the Maritime Museum at Falmouth

and
play parks
and of course the beach.
In August we took Ryan up to Bristol for the International
Balloon Fiesta. Rebecca followed two days later with their mum.
Its now September and On Wednesday 18th Ryan was rushed to the
Neuro Unit at Frenchay Hospital in Bristol (2½ - 3 hours away) His shunt was
not working. We all worried, he had the op and came home
again. Its amazing, brain surgery then home ! We were
all very happy and relieved to have him back safe and sound. Then
the following Wednesday (22nd September) it happened again. This
time his ventricles were even larger than the previous week, he went downhill
very quickly. The neuro surgeons performed an emergency operation
and he is recovering even better than before. We are of course
watching him very carefully, but he appears to be fine again now.